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Jaimie Pattison's avatar

Substack offers so much to and for, those of us with a history of being excluded for a wide range of reasons.

A lack of awareness and not being included in discussions so that decisions have been made for us, but ‘without us’ continues.

I really appreciate the time, knowledge and work that has gone into this piece, and hope it starts an important discussion that the Substack founders read and respond to.

A few other suggestions I would add are:

Always include recordings, especially of workshops and courses offered to paid subscribers. I need to watch everything in small chunks, and will often listen and read a transcript too.

Related to this, please make it clear in all information sent out, and at the start of a class that everyone can attend in the way that is best, most comfortable and safest, for them…for example, I will always need to have my camera off.

I appreciate those who already do this, but still too often have to explain why this is. It is so often assumed that it’s due to some kind of camera shyness. It isn’t, it’s due to how the neurological impact of my conditions affect how my eyes track and process movement.

At it’s mildest it causes motion sickness, but that can trigger a cascade of other responses throughout my body and nervous system, that at it’s most severe has caused blackouts. Having to explain this is both exhausting, and though not intended, it is intrusive, and othering.

I have learned how to manage this through very hard experience, as I know many others living with chronic illnesses have, and I would now like to not have to explain, or be put under pressure.

Inclusion and equality of access makes good business sense too. There are millions of us worldwide waiting for this illusion of ‘normal’ to become history, and to finally have the freedom of access and opportunity so many take for granted.

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Janine De Tillio Cammarata 🖊️'s avatar

This is very much appreciated. Specific fonts for easier reading and contrasts with background color is huge.

I enjoy adding audio for all my posts and describe the photos. It gives me some liberty to add other details that come up as I’m reading my post.

Providing accessibility to everyone is what makes this community so powerful and connected.

Thank you!❤️

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